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After the Show Podcast: Embarrass Much?

Is Sam an embarrassment?😯

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Phoebe Jacobi
Phoebe Jacobi
2 years ago

I felt compelled to write you regarding the eye issues Jodi’s mom and grandfather are experiencing and share my story in the hopes that it will help them. I was diagnosed with a serious degenerative retinal eye disease at the age of 17. I had to stop driving at the age of 25. The loss of the independence driving gives is definitely one of the hardest aspects of losing your vision. My advice to anyone going through vision loss is to ask for and ACCEPT help. I emphasize the word accept because I believe acceptance of your circumstances is the key to successfully walk through the frustration and difficulty of living with low vision and all of the other curve balls life throws at us. For a very ling time I felt like a burden to my family and friends because before Uber was around I had to ask for help to go anywhere. The faster you can realize that everyone truly wants to help, love and support you, the happier you will be.

I think Jodi’s mom should continue to accept the eye injections if the doctor thinks it could stabilize her sight. There is no treatment at all for my eye disease and I pray that some day I will have the opportunity to try the eye injections or any treatment offered to help in any way. Jodi’s “Pa Pa” needs to learn and embrace Siri on his smart phone. The voice activation features are incredible now and I can do pretty much everything just by speaking to my phone…..Siri rocks! He should also get a closed circuit magnification machine (CCTV). The Lighthouse for the blind is a great resource to learn about all of the technology and equipment available for people with low vision.

I am now 47 years old and my vision continues to worsen and degenerate, so I completely understand the fear and frustration of sight loss. I now have to walk with a guide cane and am on the waiting list for a guide dog. (Side note….Guide Dogs of Texas has great dog fostering opportunities because they need boarding on the weekends when they are not in guide training school. ) The silver lining in all of this is that dealing with a disability has made me stronger and better able to handle life’s problems. Like Sam, I have been through a couple of very difficult divorces and am now a single mom of two amazing children (Jackson, 17 and Caroline, 11). I believe my blindness has forced them to be independent, resilient and extremely compassionate. They do little acts of kindness in our neighborhood called the “trash can fairies” where they help pull in and out the trash cans for older people on our street. It is a great and fast way to help out and connect with people in our community. I was also diagnosed with colon cancer last year and am grateful to say that after going through chemo, I am in six months of remission and feeling strong! I was able to deal with my cancer diagnosis because I relied and accepted the help from my family and friends. I am with Murphy and his meditation practice. I think meditation is mandatory so I’m glad he is doing it to help him deal with his Type 1 diabetes.

I’m sorry this is so long, but to wrap it up my final advice is to find joy in an activity. I remember on a podcast a long time ago that Sam was talking about roller coasters and I connected with that. Since I can’t do many of the adventure activities I used to do, I now strap myself on a roller coaster and have a great time. ….front row baby!!!!!

I hope you know that the work you all do is very special and important. You all have a special way of connecting to everyone in a way that it really does feel like a family. I listen to podcasts and audio books all the time and your show and podcast is the first I play each day. This is the second time I have contacted you. I called in January about a fun fact for Jodi’s resume and you played my voice mail on the show which was so much fun, so thank you for that!

Tell Jodi’s mom and “Papa” to hang in there and ask for and accept help. Get Murphy and Sam to research all of the amazing services and technology there are to help those with low vision. Sam already knows all about the “Be My Eyes” app and is so nice to volunteer to do that. I’m happy to help in any way I can. Please feel free to email me if you have any questions regarding low vision resources.

Thank you Murphy, Sam, Jodi, Chad, Bailey and the entire team who makes your show possible. Keep up the great work!!!!!

Lots of love and best wishes,
Phoebe (I know, awesome name, wink wink)

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